BENGALURU: The first-ever art and film festival in India to raise awareness about rare conditions like autism, hemophilia, and thalassemia was organized in the City on Tuesday. This is expected to become an annual event from now on.
Globally there are 7000 rare diseases and there are nearly 70 million people with such issues in India, which is 1 out of every 20 persons. In Karnataka, the estimate as of February 2014 was 3.7 million.
The contemporary artist, Ranjana Ramchander, curated the art exhibition by showcasing the creative artworks and talents of children and young adults below the age of 20 with autism. Artworks of children with autism and other special needs from Shri Sajjan Rao Vidya Samsthe, Bangalore were the highlight.
“The passion in delineating, the feeling either by institution or by intention among these children are clearly visible in the vibrant colours, brilliant ideas and bold lines in their art works. Though most of them are young adults, the mindset is still younger,” said eminent artist, Balan Nambiar.
The film festival, curated by Dr A Namitha Kumar, showcased award-winning films like The Indomitable Spirit, by Maya Chandra and Extraordinary Measures by Tom Vaughan.
The Blue Ribbon Art and Film Festival was organised by Center for Health Ecologies and Technology (CHET) as a symbol of hope for people fighting such rare conditions at the International Institute of Art, Culture and Democracy (IIACD).
Rare disease patient advocacy associations in Bangalore like Hemophilia Society-Bangalore Chapter, Thalassemia Society of Karnataka, Dystrophy Annihilation Research Trust (DART) and Rotary-TTK Blood Bank also joined together in the first art and film exhibition.
-Ashika A Rao